Hello, friend.  As I am only giving out this website address to people I know, "friend" keeps you anonymous as well as myself and the main person I am going to be updating about.  Lily would be "horrified "if they knew some of their stories were being shared with the world. Don't worry, I checked.  Even my Lily's mother was equally aghast at the idea of putting this out on the web.  Clearly, I disagree.  It's cathartic for me, first of all.  Secondly, as Lily gets sicker it gets more and more difficult to relay these updates verbally without breaking down. Here, I can hide.  Which I am sort craving, at the moment.

BTW, you shouldn't have to register to make a comment. The site may ask for an email, but only use a real one if you want.  I don't care if you make one up.

Well, today has not been good for Lily.   She called off her remaining radiation on Monday by breaking down in the parking lot with her mother at her side.  While she has gone through radiation and chemo before, as you know, the intensity in this episode is at something like 60x for radiation and I don't know about the chemo - but I recall hearing something like 3x.  Lily was scheduled for 15 but only completed 10.  As you know, there was that hospital emergency, which put in a 2-3 week delay in there, but regardless, Lily was ready to "pull the plug" on all treatment if she was forced more radiation.

Her mother, the radiologist and myself agreed with her, of course.  The radiologist reported this patient-decision to her oncologist, yesterday.  Thankfully, the oncologist called Lily last night and said: "don't worry about it, we can re-visit it later".  He has always put more weight on the chemo, so this wasn't terrible news to him.  To that point, Lily started peeing blood again on Monday, which speaks to the kidney tumors growing while radiology was solely focused on the one engorged lung.

Unfortunately, the pain has not decreased, by that much.  Lily is being promised by end of the week, it will.  I, unfortunately, am worried that 3-4 more days of this pain might be too much.  Lily no longer greets me when I get home from work but stays in bed.  Desperately trying to sleep so the pain will go away.  Well, it sounds like Lily is waking up now, so I will end this update for now.

Thank you for your prayers and thoughts.